Skip to main content

Keep quiet and carry on

There is a new guy on my unit. He looks like a Red Indian and dresses like Phil Mitchell, which has led me, predictably, stereotypically, to name him Cherokee Phil. He is green, uninitiated to the ways of Bostock, like Andy in The Shawshank Redemption. I am Morgan Freeman.

Cherokee Phil talks. Actually, he chats, nattering away to the nurses like he's at a coffee morning, relaying information about himself, how he's feeling, his latest medical issues...the exact opposite to the somewhat aloof position I favour. He brings the outside in; he is clearly the same Cherokee Phil at the hospital as he is at home and is happy to let the two realities intermingle. I am not: I do not go to hospital, Hospital Rosy does, and lets nothing slip beyond her concerns about our startling blood pressure (unfortunately it still afflicts me, Normal Rosy, even when I am back home on my sofa eating Cheerios) and the occasional reference to a hangover.

My reticence has resulted in an odd state of affairs in which the nurses have seen me, talked to me, touched me, three times a week for the last four and a bit years. I spend over twelve hours a week in their care and yet they know next to nothing about me, bar the particular settings of my dialysis machine and my penchant for M&S foodstuffs. Most of them are still hazy on my name: according to my old folder, and most of the nurses, my name is "Rose"; I gently pointed out that my name was in fact Rosy and I was assured my folder would be appropriately amended. It now reads: "R. Edwards".

Even my favourite nurse barely knows me. D and I had a rocky start when we first met: she made a hash of needling my fistula the first time she tried and had to have another stab (thank you, here all week) which is the dialysis equivalent of fucking my boyfriend. But since then she has redeemed herself: she is always friendly and cheerful; she asks how I am and calls me darling; she won't let me persuade her that I'll be fine taking off 3 and a half litres of fluid - and she now needles my fistula like a dream. But the other day, as she helped me prepare for the start of my session, she moved my table to the side of my chair and said, "There you go, Rose - I know how you like it." NO YOU DON'T! YOU DON'T KNOW ME BUT AT ALL! I like my table in front of my chair - so that I can actually use it - and have positioned it in exactly the same way every single session for the last four years. Cherokee Phil has been dialysing for, like, five minutes but I bet the nurses know how he likes his table.

To be honest...I don't really mind. The nurses don't know much about me because that's how I've designed it. The less I give them of myself, the more I get to take home, in tact, at the end of the session. The nurses are lovely, reliable and efficient but I don't want mix the hospital up with the rest of my life any more than I absolutely have to; they are not my friends, and even if we weren't both fluid restricted, I doubt Chatty Cherokee Phil and I will be going for a drink any time soon.

Comments

Popular posts from this blog

Postscript

You wouldn't believe where I am. You could guess, if you've seen the gratuitous images of my self-satisfied gurning face in front of an infinity pool on Facebook...otherwise you might find it hard to imagine the paradise in which I currently find myself. I am in Dubai. Bar Abby Clancey and the cast of TOWIE, is is not everyone's idea of paradise - it actually wasn't mine. It is exciting, exotic and fucking hot, but the skyscrapers and traffic, the desert and cultural  deficiency (not to mention the chavs that clutter up the Ritz Carlton these days, I mean honestly...) suggest you'd be hard-pushed to call it paradise. It is vaulted to utopian heights simply because, four-months after the transplant, I am here. My nearest and dearest suffered for seven years as I dreamily aired my wanderlust. Yet the reward of a post-transplant holiday seemed too extravagant a prize for which to yearn - wasn't a life free from dialysis enough? Wasn't having a drink when t...

The nights are closing in

The final step of my home dialysis journey (bleugh, journey...sounds like I'm on The X Factor) begins on the 22nd July when Nurse Carla will arrive with a sleeping bag and, presumably, some strong coffee, and sit on my sofa all night whilst I perform my first nocturnal session. It is the dialysis equivalent of hiring a wet nurse. During a regular daytime session, nothing should go wrong unless I have lined the machine carelessly with one eye on Only Connect and consequently forgotten to connect/un-clamp/tighten something pivotal. Dermot should behave, stay quiet and not do any of his ghastly alarm-yelping. At night, however, the chances of rolling over onto the tubes and occluding the blood flow, or the needles falling out and slowly bleeding to death, are much higher, what with all the concurrent sleeping I'll be doing; when this happens Dermot senses DANGER and screams at me. Undoubtedly, my first session with Carla will be seamless; I know from experience that it is only ...
I must have been the only teacher in Christendom (for "teacher" read: lowly teaching assistant) not forward to half term. I was kind of dreading it, in fact. Sure, I could sleep in until mid-morning and my clothes would be safe from paint and sticky hands for an entire week, but as the holiday approached, my anxiety grew: five days without (*dramatic pause*) routine. Routine. I cling to it like a leech because I've found I can just about manage dialysis as long as EVERYTHING STAYS EXACTLY THE SAME FOREVER. On Mondays, Wednesdays and Fridays, I wake up, I go to work, I go to hospital, I stagger home, I eat and I sleep; on Tuesdays and Thursdays, I wake and go to work, I arrive home and write, I go to the gym and get on with my live sex show on th...er, I have dinner and an early night. Without work, my carefully constructed regime is in tatters and all I have to orientate my week are the sessions at the hospital and, though I do enjoy my M and S sandwich, I don't re...