I've done my make up, and my hair...I'm all dressed up, and actually, I do have somewhere to go, somewhere to which I really would liked to have gone. I was invited to a party that I had been looking forward to, thrown by someone I was excited about seeing. But I'm lying on my bed and I can't get off it. Last Saturday, I felt energetic enough to go out for Maisy's birthday and I lasted until - wait for it - almost midnight; consequently, I had high hope for this week's festivities, even if they were scheduled on a dialysis day. More than the needles and the fluid restriction or the old men who cough up phlegm, sometimes the unpredictability of dialysis is the hardest aspect. One week I might feel fine post-hospital, then the next week...exhaustion. This has resulted in huge amounts of guilt over the years: I manage to make it to X's birthday, only to let Y down a few weeks later. Not only do I feel like a class A loser - sitting on my bed, alone, on a Satu...
Living, if not always loving, life on the UK transplant list.